We face decisions every day;
minute things, like which cereal to eat in the morning, to the extremely
complex, like is it time to encourage our parents to move into an assisted
living facility? Depending on the ramifications of our choices, the amount of
stress these decisions carry certainly varies.
One way to reduce angst associated with decision making is
to step back and use a technique called goals based decision making. This term
has become associated with hospice and palliative medicine because it runs
countercultural to the way modern medicine tends to make decisions.
The idea is simple; instead of focusing on the immediate
crisis, think ahead to what the objective is. We actually do this all the time. Do we have a lot of activities today and our
goal is to have energy? Then we choose a breakfast with more protein than
simple sugars. Are we meeting a new
client that we hope to sign a contract with at work? Then we choose our more
professional vs. casual clothes. Those
choices all involve a quick determination of goals.
We do this for big decisions as well. When we decide where
we’ll rent or buy a house, we don’t just consider the immediate crisis of
needing a place to live, we think of the future and the purpose of this living
structure. Does it need a certain number of bedrooms? Is the location
important? How much work do we want to put into fixing it up? All of these are
questions about where we’re headed.
It seems so simple, and yet when we enter the complex world
of healthcare things change. A
specialist says you need to be on a medicine for your heart, because your
numbers are high. Unfortunately this medicine also causes you to be in the
bathroom 10x every morning, so you avoid leaving your house and are now napping
more in the afternoons. No one thought
to ask about the goals. Is it more important to you to have those good numbers
for your heart? Or is your goal to have energy and be out interacting with your
community? In medicine the default is to
fix the problem, not to find out what you’re hoping for.
The issue with only focusing on the disease is the
narrowness of that vision. When I meet
patients who are on 30 different medicines, with timers and schedules, pill
boxes and post-it notes, I find they are lost in the regimen. Life has become about managing the pills,
which in turn makes the numbers look good.
These patients don’t say to me, “My goal in life is to have the best
blood pressure and best cholesterol of anyone I know.” Usually their goal is living life with
quality, meaning and minimal burden.
When you have goals the decisions become easy. If the most
important thing for you is to live independently, and you are diagnosed with
something that makes that goal impossible, then the choices about medications
and procedures that would place you in a nursing home should be denied. Unfortunately it’s up to you to speak out. The
healthcare system is designed to fix diseases and avoid death, period. As to
where you’re headed, that’s up to you.
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